I know your autism speaks post was posted a while ago but i just wanted to tell you something - I am an Alpha Xi Delta. There have been many sisters across the nation that spoke up to nationals about our philanthropy (myself included) but not enough sisters have spoken up against it. many people DON'T know. but SOME do. it is extremely unfair to categorize all sisters into one, clueless category. some of us really are trying to make a difference and change from autism speaks, but there's nothing
I really do understand that not all sisters are ignorant, but I wrote that post after a long, LONG string of people who were not only ignorant but also completely rude about it. Like the kind of rude that breaks your spirit and has been one of the things that makes me write off Instagram, which was where most of the rudeness went down. I also understand that as your national philanthropy, there’s not much you can do, and if you don’t wanna quit or be kicked out, you might even be required to do things (much like some cashiers are required to ask for money for the organization, which I understand as well). And I’ve also dealt with your national group (online, not in person), and I found the responses to be lacking and rather… I dunno, dismissive. Which makes me sad. That open letter was specifically for the people who did not know (as well as the national organization, who IIRC was being a butt to a lot of autistic people at the time), it was posted in immense frustration, and I wrote it the way I did because generalization was the best rhetorical choice to get people to pay attention. I’m sure I come across as some sort of SJW or something in that letter the way it’s written, but it’s rather specifically aimed at the people I was frustrated with at the time: people who were extremely rude and/or dismissive, people who just didn’t seem to care. Because it hurts to see someone support an organization that has said and done so many actively hurtful things and then when you speak out, that person is actively hurtful to you. I’m sorry if this is a bit all-over-the-place. I’m tired, a bit agitated due to something else, and am also taking a hiatus from this blog and really didn’t wanna get on. Thanks. (TL;DR: I know you’re not all like that. I’m allowed to be frustrated at the people who are, but I am actually really proud of the people who have spoken out and have received some nice messages from those people in response to the letter. The letter was aimed at a specific subset of sisters and was posted the way it was because I was practically on the verge of losing the ability to words when I wrote it (heck, I’m losing the ability to make understandable words right now).)
us as sisters can do. it must be a group effort. i understand your frustration with AS and axid, but it simply is just unfair to assume we all don’t know. many of us do, and many of us are fighting for change
I am so turning off my ask box after tonight.
I was taking a long break from this blog because it stresses me out lately and I just got a “not all sisters” ask that I will be answering.
And then I will be disabling things and getting off.
My six year old brother is autistic and is always repeating lines from tv shows and movies. He doesn’t really say anything unless he saw it in a show. And he can’t have regular conversations, all he does is speak in lines from tv and movies. For Easter today, we went over to my uncle’s house for lunch. There were other kids, the children of my uncle’s friends, there that he hung out with. They were all probably middle school age or whatever. And my brother kept wanting to play with them, but they didn’t understand him because he asked them in a movie line. And so he got frustrated, asking them over and over again. I could tell he was frustrated. But he kept trying to get their attention by running around the pool, which my dad just let him do, even though it was slippery and he could get hurt. My dad never does what he’s supposed to. He’s always late for work, always making my mom and me late to family events, and he’s always stuffing his face and pointing fingers at other people. My mom asked me to watch my brother while she went to the bathroom, and I did. I told my brother not to run around the pool, which he does anyway. I pulled him to the side and he started screaming at me. I tried to take him inside to sit so he could calm down, but all he did was cause a scene by screaming and crying. When I get inside with him, my mom turns it on me and gets mad for trying to tell her what happened. I just really can’t stand my family. My lazy ass dad. My dumb fucking mom that called me a bitch the whole way home. And my incoherent brother that everyone just lets him do whatever he wants just because he’s autistic. I realize that he needs extra help, but that doesn’t give him special privilege to misbehave. My parents are going to have the worst time having to deal with him themselves after I leave for college. I feel bad for him, he deserves better than their abusive asses.
I don’t know the whole situation, but the screaming and crying sounds like it may have been a meltdown. If it was a meltdown, he can’t help it, even if it causes a scene. (I had a meltdown for an hour in front of a dorm at my college orientation because I was too overwhelmed with everything that had happened that day and people were trying to force me into a very uncomfortable situation. My parents got mad because I was causing a scene.)
As for echolalia, I do the same thing. Maybe you could attempt to teach him to quote more understandable lines? I don’t solely use quotes as communication, but they’ve been a notable part of it since I was 12, and probably earlier (I only remember it definitely existed at 12 because that was when I was convinced that me and my echolalia were psychic). It’s possible you can’t redirect the quotation, and that’s fine, too… but yeah.
I dunno how old the post about the autism spectrum is, but I would like to say that argument by analogy is a fallacy, and that the color wheel is a representation of a linear spectrum to begin with, as visible light's color changes as its wavelength moves from value a to b. Furthermore, "functionality" is generally a measure of how easily someone on the spectrum can interact with allistic people, and it so follows that "higher functioning" people are effectively "less autistic."
well, you can like to say that all you want but it doesn’t make you right or make me want to listen to you. :D
an autistic person’s ability to interact with allistics is not something you should be judging them on. there is no such thing as “less autistic” or “more autistic”, and babbling about linear spectrums won’t change that.
functioning labels dehumanize autistics and harm us. they are gross. it isn’t that hard to understand — labeling someone as “more functional” is ableist and ableism is wrong. the end.
Still, the linear frequency spectrum of electromagnetic radiation doesn’t place wavelengths as “more” or “less” electromagnetic. Yeah, gamma rays do some scary things that visible light or radio waves can’t, but they aren’t really held up as “more important” or anything (they are more powerful in terms of energy, but importance is the analogy to autism here so yeah). The electromagnetic spectrum (and the light subset) assert a lot of things, but that’s not one of them.
So, my experience with captioned movies in theaters so far:
I’ve gone to 3 movies at Regal using the Sony captioning glasses, and they worked almost flawlessly all 3 times. (“Almost” because a few lines failed to display, but I’ve heard the same of competing systems as well.) However, the glasses *are* a bit bulky, and thus an impediment to snuggling.
So I decided, hey, why don’t I try AMC and their CaptiView device today instead?
Suffice it to say, in 1 screening, it failed to show captions on two separate devices that I got from the front desk (i.e., something was wrong with the transmitter). And there was no indication at all that anything was wrong until the movie had actually started. (Which is another thing— even parts of the trailer reel were captioned at Regal, so I knew it was working beforehand.)
So yeah, I got a refund and am going to see Captain America at Regal instead. Sorry, AMC…
My mom uses the headphones at AMC, and she declared a problem with those, too. There’s too much static, and she’s switched out headphones, so we’re thinking it’s the theater’s transmitters.
#blk help improve the quality of life for those affected by #autism
People who post Generation Rescue stuff make me hate private Instagrams more than Autism Speaks. If the OP sees this… Generation Rescue promotes DANGEROUS things. That’s the Jenny McCarthy group.
Recently I found the #actuallyautistic and #autism tags on here. First I was really thrilled because I found out that there are a lot more people like me out there and on this site. Now I see all of these “fuck NTs” posts and I feel like a really ignorant person in my own community because I have been immersed in an NT environment, have almost all NT friends, etc. I’m kinda lost. Are there any high functioning kids out there? Can someone help me navigate through this?
A lot of it is people getting annoyed at things happening in their life that are largely related to people (mostly NT) saying things or doing things that make them greatly uncomfortable. “F NT” is an easy way to get the frustration out quick.
i make a comic about a serious thing really poorly!
but seriously, i see/hear these snide comments all over youtube/facebook, and i started making this! sorry if its a bit confusing >v<”
and my handwriting sucks too, but i hope the point gets across!
Slightly inaccurate in terms of low vs. high functioning being a false sort of dichotomy (as well as not all autistic people having “special gifts”), but not bad.
Ask the IRS to investigate these accusations of unethical and unlawful conduct.
Sign Here ————-> http://www.change.org/petitions/investigate-autism-speaks-for-unlawful-unethical-activity
Image description: Black background with fire around bottom edges. Red text reads: Feet to the Fire.
Tell the IRS that it must hold Autism Speaks accountable for deceiving the public about spending.